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Kidney Organizations

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Organization Contact Information Ask About
American Association of Kidney Patients
2701 North Rocky Point Drive, Suite 150
Tampa, FL 33607
Phone: (813) 636-8100
Toll Free: (800) 749-2257
Fax: (813) 636-8122
Email: info@aakp.org
Web Site: www.aakp.org
  • Patient education programs.
  • Magazines and pamphlets about living with kidney disease, dialysis and transplant.
  • Health-tracking tools.
  • Local patient groups.
American Kidney Fund
11921 Rockville Pike, Suite 300
Rockville, MD 20852
Toll Free: (800) 638-8299
Fax: (301) 881-0898
Email: helpline@kidneyfund.org
Web Site: www.kidneyfund.org
  • Financial grants for persons with kidney failure.
  • Discount pharmacy cards.
  • Education programs and pamphlets about kidney disease, dialysis, and transplant.
Life Options Rehabilitation Program
414 D’Onofrio Drive, Suite 200
Madison, WI 53719
Toll Free: (800) 468-7777
Fax: (608) 833-8366
Email: lifeoptions@meiresearch.org
Web Site: www.lifeoptions.org
  • Free booklets on exercise, family support, employment and insurance with kidney failure.
  • Resources to help people with kidney disease live long and well.
National Kidney Foundation
30 East 33rd Street, Suite 1100
New York, NY 10016
Phone: (212) 889-2210
Toll Free: (800) 622-9010
Fax: (212) 689-9261
Email: info@kidney.org
Web Site: www.kidney.org
  • Patient Advocacy.
  • Support Groups.
  • Education programs and pamphlets about kidney disease, kidney failure, dialysis and transplant.
National Kidney & Urologic Diseases Info Clearinghouse
3 Information Way
Bethesda, MD 20892
Toll Free: (800) 891-5390
Fax: (703) 738-4929
Email: nkudic@info.niddk.nih.gov
Web Site: www.kidney.niddk.nih.gov
  • Information and pamphlets about disease, dialysis and transplant.
Renal Support Network
1146 N. Central Ave. #121
Glendale, CA 91202
Phone: (818) 543-0896
Toll Free: (866) 903-1728
Web Site: www.rsnhope.org
  • Provides non-medical services to those affected by chronic kidney disease (CKD).
Polycystic Kidney Research Foundation
8330 Ward Parkway, Suite 510
Kansas City, MO 64114
Phone: (816) 931-2600
Toll Free: (800) 753-2873
Email: pkdcure@pkdcure.org
Web Site: www.pkdcure.org
  • Information on polycystic kidney disease, research, support groups and advocacy.
P.O. Box 1133
Washington, DC 20013-1133
Email: healthfinder@nhic.org
Web Site: www.healthfinder.gov
  • Information on kidney disease, as well as other conditions that patients with kidney disease might have.
Home Dialysis Central
c/o Medical Education Institute, Inc.
414 D’Onofrio Drive, Suite 200
Madison, WI 53719
Phone: (608) 833-8033
Fax: (608) 833-8366
Web Site: www.homedialysis.org
  • Information on home dialysis.
  • Online support groups for patients and caregivers.
Kidney School Web Site: kidneyschool.org
  • Sixteen 30-minute online modules regarding kidney care, treatments, coping, staying active, vascular access and quality of life. Also available in Spanish.
Dialysis Patients Citizens
122 C Street NW, Suite 510
Washington, DC 20001
Toll Free: (866) 877-4242
Fax: (202) 789-6935
Email: dpc@dialysispatients.org
Web Site: www.dialysispatients.org
  • Non-profit, patient-led dialysis organization open only to dialysis and pre-dialysis patients and their families. DPC is working to improve the quality of life for all dialysis patients through education and advocacy.
Forum of ESRD Networks
P.O. Box 203
Birchwood, WI 54817
Phone: (715) 354-3735
Fax: (888) 571-2065
Web Site: www.esrdnetworks.org
  • The Forum website helps find your Network or dialysis center, locate other kidney resources, read articles about kidney health, and learn about kidney-related meetings.
Kidney Quest Foundation
1058 N. Maclay Ave
San Fernando, CA 91340
Phone: (818) 521-6348
Fax: (818) 698-6441
Email: kqfoundation@gmail.com
Website: www.kidneysquestfoundation.org
Kidneys Quest Foundation works in several areas:

  • Support and direct kidney patients on next steps to take after being diagnosed with a kidney disorder.
  • Dialysis support • Introduce options to potential candidates to do dialysis at home so they can have time available for employment.
  • Preparing renal patients to become and stay active on a Kidney Transplant List.
  • Eating with enjoyment, including menus availability
  • Exercising or staying active, and being involved in hobbies.
  • Staying in control of their life with a kidney condition.
  • Helping kidney patients achieve their optimal quality of life.
  • Post kidney transplant support services.
  • Outreach events to let people know we are here for them.
  • Bringing information to the community on how to become a Live Kidney Donor how to give the gift of life.–
NephKids Web Site: cybernephrology.ualberta.ca/nephkids
  • Visit the site to subscribe to a doctor-moderated email support group for children or teens with chronic kidney disease. The site also contains information on kidney disease in children and links to kidney disease resources.
The Nephron Information Center Web Site: www.nephron.com
  • Go to this site for information about kidney disease, dialysis and transplant.
Children’s Organ Transplant Association, Inc.
2501 West COTA Drive
Bloomington, IN 47403
Toll Free: (800) 366-2682
Fax: (812) 336-8885
Email: cota@cota.org
Web Site: www.cota.org
  • Learn about fundraising options and financial help for children’s transplants.Organ Donation website: www.organdonor.gov
  • Read transplant and donor stories, and get answers to questions about transplants.
Donate Life America
701 Byrd Street, 16th Floor
Richmond, VA 23219
Phone: (804) 377-3580
Fax: (804) 377-3590
Email: donatelifeamerica@donatelife.net
Web Site: www.shareyourlife.org
  • Organ and tissue donation information.
Transplant Recipients International Organization (TRIO)
2100 M Street NW #170-353
Washington, DC 20037-1233
Phone: (202) 293-0980
Toll Free: (800) 874-6386
Email: info@trioweb.org
Web Site: www.trioweb.org
  • Information on donor awareness.
  • Advocacy for transplantation.
United Network for Organ Sharing (UNOS)
700 North 4th Street
P.O. Box 2484
Richmond, VA 23219
Phone: (804) 782-4800
Toll Free: (888) 894-6361
Fax: (804) 782-4817
Web Site: www.unos.org
  • Information and pamphlets on organ donation and transplants.
  • Transplant waiting lists.
  • Statistical information.
Other Medicare End-Stage Renal Disease (ESRD) Program Projects Web Site: www.cms.gov/Medicare/End-Stage-Renal-Disease/ESRDQualityImproveInit To access additional information on the End Stage Renal Disease Program and quality activities, visit this site.

Note: To file a grievance please contact ESRD Network 18 of Southern California at 888-268-1539 – 700 N Brand Blvd. Ste. 405, Glendale, CA 91203

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